Wednesday, February 3, 2016
The past few months have felt like a whirlwind! So much has changed and so much has happened. December began with Sarah having a 48 hour EEG done, which was difficult to say the least. And it ended with our basement flooding. Each of those events deserves its own blog post, but I just haven’t had time to sit down and write it all out. What I will say, though, is that we are truly witnessing the Lord’s mighty and redemptive hand in all He is doing and allowing to happen within our family’s lives and within our home.
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| Can you see all that water? |
Most of our friends and family know about Sarah’s first seizure in August, but not every one is aware of her subsequent episodes. She had her second in early November while we were at church. One of the greeters, Mike, rushed into the sanctuary while were were praying to get me and, upon hearing the news, I raced to the nursery where I found Sarah still shaking in one of the nursery worker’s arms. I took her and held her until she woke up and we then brought her home. The Neurologist, who we saw the following day, ordered a 48-hour EEG, which was done in our home and allowed us to be no more than 2 feet away from Sarah at all times. The results returned normal and we were hopeful that this was again just a rare occurrence caused by the fact that she was ill the day before she seized.
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| She's such a trooper! The hardest part was sleeping with this thing on. She had to be in our room so we could make sure the cords wouldn't wrap around her neck. |
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| Other than those struggles, she just played like nothing was different. She even learned to say the words, "back pack." |
All was well until last week when Sarah came down with the stomach flu. Phil and I were expecting her to have a seizure given her history of episodes following illness, particularly illness during which she has vomited. So, when I saw her body turn rigid upon standing up next to our dresser, I knew immediately what was happening. We were calm enough to remember to videotape the event, which our doctors praised us for later, and I even methodically removed her firm grip from the dresser drawer and carefully laid her in my lap, stroking her hair as she convulsed. It lasted about a minute and a half, her lips turning blue, her eyes rolled back and her hands in tight fists, until she woke up, taking in a gulp of air and finally looking around the room, exhausted. I was exhausted, too. But Phil and I felt a sense of relief after this seizure. The fact that she did have one while being sick further confirmed our suspicion that her seizures are caused by illness. We also were happy to have the event behind us and we were ready to get on with our day after a quick trip to the pediatrician and a call to the neurologist.
Little did we know that Sarah would proceed to have two more seizures within the next 36 hours: one the next morning when I was lifting her into her high chair and the second later that evening when were were playing in her room. The latter was the scariest of the three, though. She had just lifted herself up to standing next to the rocking chair and we didn’t realize she had begun to seize until after her straight-as-a-board little body had already started to fall backwards towards the floor, three inches from the corner of the dresser. Thankfullly, the room was carpeted and she suffered no injuries (Praise the Lord), but 3 seizures within 36 hours still warrants a trip to the ER, so off we went.
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| The child life specialist at the hospital helped to make us feel "at home" by bringing lots of toys to play with and a cuddly blanket to snuggle with. |
At the hospital, Sarah and I waited 2 hours before getting looked at and another 3 before finally getting admitted to a room. The next two days were full of tears, little sleep, loneliness, fear, but in the midst of it all, unexplainable joy! Our little Sarah endured lots of poking, prodding, waking in the middle of the night for vital checks, another EEG (normal!!!) and an MRI (normal!) and my thoughts and emotions were all over the place through it all, but at the end of the day, I was peaceful.
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| We spent the majority of our days like this. |
We have such an amazing community of support! We had hundreds of people within our churches (Village Church of Bartlett and Holy Resurrection Orthodox Church) praying for us, people we’ve never met in Mexico (connected through our church), people all across the country who heard about our little Beara from facebook, over a hundred other christians from a friend’s church, parents of friends, friends of parents…I could go on. I think there are probably thousands of people praying for us. Can you imagine the peace and joy this brings to a mother’s heart knowing how many people are lifting up her daughter to the Almighty Father? Unexplainable joy. Unspeakable peace.
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| Danielle came to my rescue! She brought me a sandwich for dinner the night we arrived at the ER and then took the day off of work and came back the next day with shower supplies for me and toys and books for Sarah. She was the distraction and support I needed to keep me sane and the perfect advocate for when the doctors came and my mind was overwhelmed and I couldn't think of the questions to ask. I am so sad to not have gotten a picture of my friend, Puja, who visited and brought me a change of clothes for Sarah to go home in and a shoulder to weep on right after we came back from the MRI, and my other sister, Laura, who went to the store and bought some new toys and a coloring book for Sarah and kept me company for hours Monday night. I love you all dearly! |
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| Smiling after a very restless night! |
We left the hospital after two days, aching to see Phil and Maddie. We just missed them so much!
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| Mads and Daddy took a trip to Target to buy a Doc McStuffins DVD while we were away. I'm glad they could spend some Daddy Daughter alone time together. It seems like they had so much fun! |
We were given a prescription for Keppra, which we decided was the best thing to do for Sarah in order to prevent injury due to falls from losing control of her body, and a diagnosis of a Seizure Disorder (the new way of saying “epilepsy”). The next couple of days were difficult as we struggled to get the dosage right to lessen the side effects (Sarah was having some trouble with coordination for a couple of days), but after a little while, well, she's back to being Sarah! We are so blessed by this experience! To feel the sense of love surround us in our time of need and to feel God’s hand in control of the situation and leading us in His wisdom to do what's best for our (His) daughter…His blessings are too great for words. So, like I said, God redeemed this and is using it for good and we are grateful to Him for it.
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| ...Like nothing ever happened (sporting the way-too-cool-for-school pants bought by Puja!) |
And the basement! How little a flooded basement matters in the midst of a health crisis, but I don’t want to not give praise for the blessings He has given us through this trial, too. Our walls are finally going up this week and we are looking forward to having new paint on the walls soon. I posted to Facebook shortly after the flood occurred saying that I was excited to see how the Lord would provide for our space.
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| This is a panorama view of our basement after the walls were ripped out. It's been like this for about a month. |
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| Walls going up!!! |
Over the course of the next few weeks we were blessed by several unexpected gifts from friends and family to help us finance our “remodel.” One gift came the day we got the proposal from the contractor for the drywall - it was the exact amount we needed to cover the expense! We paid a lot out of pocket, but are seeing other ways the Lord is helping us to recover those expenses (ex: my norwex business and a higher than expected tax-return, just to name a couple). We were blessed through the people who came into our home to help with the clean-up, too (the workers were Christians and encouraged us and went above and beyond when working in our home). I had a clear moment the day after the flood as I gazed out at all of our belongings on the curb that had been destroyed by sewage and I felt the Holy Spirit whisper to me, “See how much I’ve blessed you?” It brought tears to my eyes as I recalled all of the gifts the Lord has given me and some shame, too, as I realized how little I was trusting Him in that moment.
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| Memories are within our hearts, not our belongings. |
Job 1:21 “Naked I came from my mother’s womb, and naked shall I return. The LORD gave, and the LORD has taken away; blessed be the name of the LORD.”
Who am I to not trust in the Lord’s provision for the future? Who am I to not thank Him for the temporary things I once owned?
So, reflecting on both of these events, I am so thankful to God for CLEARLY teaching me to trust in Him. He is fully in control of every situation. I am learn-I-N-G to lean on Him, to let go of the reigns, to breathe and trust in the power of prayer, to remember that He loves my daughter even more than i do and to believe that he REDEEMS ALL THINGS FOR GOOD! (even when we can’t see it in the moment)
Romans 8:28 And we know that for those who love God all things work together for good, for those who are called according to his purpose.
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| REUNITED!!!! We are so happy to be home and resuming normalcy. |
Psalm 34
I will bless the Lord at all times;
his praise shall continually be in my mouth.
2
My soul makes its boast in the Lord;
let the humble hear and be glad.
3
Oh, magnify the Lord with me,
and let us exalt his name together!
4
I sought the Lord, and he answered me
and delivered me from all my fears.
5
Those who look to him are radiant,
and their faces shall never be ashamed.
6
This poor man cried, and the Lord heard him
and saved him out of all his troubles.
7
The angel of the Lord encamps
around those who fear him, and delivers them.
8
Oh, taste and see that the Lord is good!
Blessed is the man who takes refuge in him!
9
Oh, fear the Lord, you his saints,
for those who fear him have no lack!
10
The young lions suffer want and hunger;
but those who seek the Lord lack no good thing.
11
Come, O children, listen to me;
I will teach you the fear of the Lord.
12
What man is there who desires life
and loves many days, that he may see good?
13
Keep your tongue from evil
and your lips from speaking deceit.
14
Turn away from evil and do good;
seek peace and pursue it.
15
The eyes of the Lord are toward the righteous
and his ears toward their cry.
16
The face of the Lord is against those who do evil,
to cut off the memory of them from the earth.
17
When the righteous cry for help, the Lord hears
and delivers them out of all their troubles.
18
The Lord is near to the brokenhearted
and saves the crushed in spirit.
19
Many are the afflictions of the righteous,
but the Lord delivers him out of them all.
20
He keeps all his bones;
not one of them is broken.
21
Affliction will slay the wicked,
and those who hate the righteous will be condemned.
22
The Lord redeems the life of his servants;
none of those who take refuge in him will be condemned.